The Adventures of the Bath Family

The first weekend of June was South Jordan days. This year has been very cold so far and we haven't had much spring. We went to the South Jordan Parade which was our first parade of the summer but it felt more like winter and even snowed a little that day.

Brynnley celebrated her 4th birthday all month long!

She chose to eat her birthday dinner at Texas Roadhouse where she got to ride on the saddle and get her own ice cream.

We also went to see the movie "Life of Pets 2" that weekend.

We held a combined birthday for Brynnley and me at our house for some dessert....chocolate cake with a unicorn of course was the top choice.

My mom made me a special fruit platter for my "cake" since I am not supposed to have sugar.

We spent my actual birthday, which landed on Father's day this year camping at Hyrum Lake. My parents came up with us for the weekend to celebrate and enjoy boating.

Playing at Hyrum Lake with the kayak for the first time.

Of course we had to make s'mores over the campfire and the girls even played games with Papa Matt.

Aubrie was brave enough to ride the tube for the first time behind Papa's boat.

I also decided to take a ride too since I haven't been tubing for years. It was fun but not so fun falling in the freezing water.

Hyrum Lake

Brynnley requested back at the beginning of the year that she wanted a Unicorn theme party for her 4th birthday. She invited Addie and Harper and Ezra and Allie Bush next door.

Today I had an appointment with Dr. Werner at Huntsman to discuss the results of my genetic testing done on the new tumor that was found on my bowel. The results of the testing from Foundation One were the same mutations seen on my tumors back in 2016 prior to starting Palbo. The mutations that were found are a EGFR mutation (this is normally seen in lung cancer pts) and a CDK4/6 mutation or low levels of this protein in the tumor (this is normally seen in breast cancer).

Dr. Werner was unsure of why the Palbo and letrozole combo has worked for 2 years and has even decreased tumor size in many of my tumors but didn't stop or stabilize the new bowel spot that was found in March. At this point she would like to wait and do another CT scan in July and continue with the same medication that I am currently on. If something does show up in the next CT scan, the plan will be to consider adding another medication that blocks estrogen called Fulvestrant. This is a thick injection that you get in your butt each month. She also mentioned that there is a clinical trial that I may qualify for if I have a measurable tumor that is looking into immunotherapy vaccines. As of right now, immunotherapy is not effective on the mutations that my tumors are showing. It is interesting that in different countries like Germany and Sweeden, this has been successful for ovarian cancer patients but in the US we are just starting trials. My mom has found a Dr. that moved from the US to Sweden to continue immunotherapy vaccines and may be a possibility in my future... her name is Dr. Lana Kandalaft.

I hate the "wait and see what happens" approach, especially since I just had all tumors removed and want to be as proactive as I possibly can. I do like how Dr. Werner is willing to let me do alternative treatments as long as I check with her to make sure there are no drug interactions. For example I learned today from her that if a patient is doing high dose Vit C injections at the same time as getting chemo, it actually makes the chemo less effective. I also learned that I need to be very careful to stay away from any hormones including "phytoestrogens" which I heard were good at blocking estrogen in our body. It really all depends on the medications that I am taking...for example Letrozole and phytoestrogens actually increase estrogen in my body but tamoxifan, another estrogen blocker would be ok with phytoestrogens.

I will meet next week with a holistic lady at a place called Rising Health to go over results of a lot of testing my gut health and many other blood work to see if I am insulin resistant as well.

I am going to re-focus my attention on clean eating this June and get back on track to return to the gym (once my abdomen is healing a little more) and feel better with what my body is absorbing via food and even the skin care and housecleaning products I use.

Here are the results from my visit with Sharlene Watson on June 4th:

Things that were positive in my testing that can increase inflammation in my body, which in turns increases cancer growth.

Positive test results:

1. Antigliadin IgG positive for non celiac gluten sensitivity 39 normal 0-19

Treatment: no wheat, dairy, corn, sugar

2. Mold IgG (white blood cells are activated to fight but not IN the fight)

Treatment: Re testing with nose swab on 6/4 and urine test to find out if its actively in my system or not. Get a kit from Home Depot and can have a company clean it out.

Anything above 30 is bad….my score is 65, 33, 73, 14.

3. Candida antibodies IgA: my score is 10 normal is 0-9

Treatment: Nystatic 500 2x/day for 3 months

4. Arsenic: my score is 9 normal should be under 50 per internet and 2-23 in labcorp paperwork

Treatment: avoid rice, water and pesticides

5. Epstein Barr Virus (mono): kind of high for me. My score is 1:20 normal is less than 1:20

Treatment: Cats Claw

6. Mycoplasma pneum. High (lives in respiratory tract) She thinks mine is inside the cell which can cause joint pain. IgG (getting ready to fight) is 1815 normal is 0-99

IgM (WBC already in the fight) is 799 normal is 0-769

Treatment: Azithromyosin (if get diarrhea, call her to switch meds) and Monolorin

7. Ferritin: Very high (inflammatory #) mine is 551 normal is 15-150

My report from U of U: 5/2017: was 26

11/2017 was 170

7/2018 was 143 (had iron transfusion)

11/2018 was 475

Treatment: We are retesting this as it could be high due to surgery. Dr. Werners team is ok with the current levels

8. Thyroid is good but need to increase Vit D levels I am at 42 normal is 30-80 (I was 33 in Feb 2018)

TREATMENT PLAN:

1. Ferritin , C-reactive protein, and GGT levels to be retested at lab due to post surgery with first test

2. Molds- tested with nose swab 6/4 and will do Urine test (do at home)